Sometimes you think that people are just about at their low then you end up with doctors who know so little about fibromyagia or chronic pain syndrome that they push their beliefs off onto the patient. See the problem is Pain is invisible if its not in the form of broken bones, pulled ligaments, heart attacks. These things can be seen easily.
When you suffer from Chronic Pain you know exactly what Im talking about. You go to doctors only to find you speaking on deaf ears. Then when you take all you can from them when they obviously are breaking your patient rights and tell them about it you end up without a doctor again. The doctor who diagnosed me with Fibromyagia told me I would see multiple doctors over my period of sickness. I didnt believe him
Thursday, May 21, 2009
Monday, May 18, 2009
Sunday, May 17, 2009
Stress
Being sick can take a toll on you. Living with pain from my conditions is stress enough then you have to add the stress of incompetent doctors and disability threw social security. You know I have worked most of my life with the exception of having kids, being sick and vehicle trouble. I have an Xhusband who is the devil incarnate (if I really beleived in the devil, he would be it) but since I am Wiccan I don't believe in the Christian devil.
Dealing with people who do not understand Fibromyagia and Chronic Pain Syndrome is like trying to urinate up a rope. They just don't understand pain and how it affects you physically and mentally.
With my sickness and having to deal with all the above is really taxing my system. I have to stay strong cause I am fighting for all of Missouri's sick people. My voice is strong and loud and now that I am using my anger to work for good.
But still even with being an activist I am human, I have feelings and pain. Thankfully I will be going to a Behavior Clinic so they can help with the emotional side of my pain. If I was treated with respect and my pain treated properly I wouldn't be so stressed out..
Link up and lets make NOISE!!!!!!!!!!!!!!!!!!!!!!!!!!!
Dealing with people who do not understand Fibromyagia and Chronic Pain Syndrome is like trying to urinate up a rope. They just don't understand pain and how it affects you physically and mentally.
With my sickness and having to deal with all the above is really taxing my system. I have to stay strong cause I am fighting for all of Missouri's sick people. My voice is strong and loud and now that I am using my anger to work for good.
But still even with being an activist I am human, I have feelings and pain. Thankfully I will be going to a Behavior Clinic so they can help with the emotional side of my pain. If I was treated with respect and my pain treated properly I wouldn't be so stressed out..
Link up and lets make NOISE!!!!!!!!!!!!!!!!!!!!!!!!!!!
Friday, May 15, 2009
Sign the Petition to End Drug Prohibition
Please sign the petition. Its time for change and to stop waisting our federal money on raids of Medical Cannabis Dispensaries and arresting our sick people..
http://www.enddrugprohibition.com/index.php
http://www.enddrugprohibition.com/index.php
Thursday, May 14, 2009
Support System
One of the most important things we can do is get with a good support system to talk about your conditions, side effects and treatments that work for you. It is my hope to start a support system so that we can help each other thru these times when we feel like we can bare no more.
Having someone to talk to about your issues helps bring down the stress and allows you to see how others are dealing with their health issues.
If you find my blog please send to others and lets break this nasty cycle of the feeling of being alone.
BB
Iriseyes
Having someone to talk to about your issues helps bring down the stress and allows you to see how others are dealing with their health issues.
If you find my blog please send to others and lets break this nasty cycle of the feeling of being alone.
BB
Iriseyes
Tuesday, May 5, 2009
Sick and Tired of being Sick and Tired
May 5, 2009
Oh what a glorious life we lead with our Chronic Pain Syndrome and Fibromyagia conditions in toe. What makes matters worse is the politics of visiting doctors offices and finding one with knowledge of these conditions and the symptoms and that accompany them.
Recently, I have been running into problems with my doctors. When diagnosed I began a regimen of Lyrica, anti inflammatory, muscle relaxers and other types of medicines. I have deep hip pain and really my right side is more affected with joint pain than the right. Bigger joints bring forth bigger pain.
There are times I wake anywhere from 2 - 6 am in excruciating pain I tell my doctor and they start cutting meds. Wait a min I said I was in pain not pain is decreasing. I'm thinking what is up with this. Then I sat down with a doctor and was told because I'm 37 years old I'm really not a prime candidate for any type of narcotics. Okay, my pain isn't that bad cause I'm young - no it is bad. As I visit doctors and they tell me this works or that works I had always been wandering why???
I am on 800mg of Gabapentin every 8 hours, 10 mg Flexiril every 8 hours as needed, was on 2 50mg Tramadol every 4-6 hours for pain and got it cut to 2 tablets morning and night. I take 8mg of Zanaflex at bedtime. At a visit to a local ER they gave me injectable benedryl so I have been taking benedryl at bedtime too.
Now major problems has surfaced my doctor wants me to visit a pain clinic for treatment as they don't prescribe anything like that at the office. The pain clinic is I suppose okay but they want $180.00 for the first consultation and no treatment on the first visit. They do not prescribe anything by mouth unless you have mainstream insurance or deemed totally disabled. I'm neither at the moment. So this has put me in a very peculiar situation. Now my doctor is charging me with a refusal to go to the pain clinic, I'm not refusing I'm just not able to pay for it. On a phone call with the pain clinic it was suggested I get with my doctor to supply me with medications while I wait my answer for medicaid. Since then my doctor is now refusing any of my medications that are desperately needed for pain. Though they could be better I will still stick with it.
Research shows medical cannabis can help people like me treat pain effectively and non-harsh side affects. I tried this and now face problems as I ended up in the ER for pain management. They drug tested me and I failed for cannaboids and Opiates. For the love of Pete if they would treat my symptoms and actually give me something that treats my pain effectively I wouldn't have to scour the streets to find some sort of pain relief. Its a horrible feeling to do that but what else am I to do?
Sick and tired of being treated this way.. Do all Fibromyagia and Chronic Pain Sufferers deal with this type of treatment from medical professionals?
Oh what a glorious life we lead with our Chronic Pain Syndrome and Fibromyagia conditions in toe. What makes matters worse is the politics of visiting doctors offices and finding one with knowledge of these conditions and the symptoms and that accompany them.
Recently, I have been running into problems with my doctors. When diagnosed I began a regimen of Lyrica, anti inflammatory, muscle relaxers and other types of medicines. I have deep hip pain and really my right side is more affected with joint pain than the right. Bigger joints bring forth bigger pain.
There are times I wake anywhere from 2 - 6 am in excruciating pain I tell my doctor and they start cutting meds. Wait a min I said I was in pain not pain is decreasing. I'm thinking what is up with this. Then I sat down with a doctor and was told because I'm 37 years old I'm really not a prime candidate for any type of narcotics. Okay, my pain isn't that bad cause I'm young - no it is bad. As I visit doctors and they tell me this works or that works I had always been wandering why???
I am on 800mg of Gabapentin every 8 hours, 10 mg Flexiril every 8 hours as needed, was on 2 50mg Tramadol every 4-6 hours for pain and got it cut to 2 tablets morning and night. I take 8mg of Zanaflex at bedtime. At a visit to a local ER they gave me injectable benedryl so I have been taking benedryl at bedtime too.
Now major problems has surfaced my doctor wants me to visit a pain clinic for treatment as they don't prescribe anything like that at the office. The pain clinic is I suppose okay but they want $180.00 for the first consultation and no treatment on the first visit. They do not prescribe anything by mouth unless you have mainstream insurance or deemed totally disabled. I'm neither at the moment. So this has put me in a very peculiar situation. Now my doctor is charging me with a refusal to go to the pain clinic, I'm not refusing I'm just not able to pay for it. On a phone call with the pain clinic it was suggested I get with my doctor to supply me with medications while I wait my answer for medicaid. Since then my doctor is now refusing any of my medications that are desperately needed for pain. Though they could be better I will still stick with it.
Research shows medical cannabis can help people like me treat pain effectively and non-harsh side affects. I tried this and now face problems as I ended up in the ER for pain management. They drug tested me and I failed for cannaboids and Opiates. For the love of Pete if they would treat my symptoms and actually give me something that treats my pain effectively I wouldn't have to scour the streets to find some sort of pain relief. Its a horrible feeling to do that but what else am I to do?
Sick and tired of being treated this way.. Do all Fibromyagia and Chronic Pain Sufferers deal with this type of treatment from medical professionals?
Saturday, March 21, 2009
ER Visit
Well yesterday morning I finally took all I could. I went to the ER and ended up with a shot of Torodol (not sure that is spelled correctly) and 2 vicodin tablets. I just am not sure what I can do to help out my situation.
I have started doing research on Medical Marijuana and its affects on Fibromyagia and this chronic pain that is associated with this debilitating illness. I think they should call this problem "Life Stealer" cause that is what it actually is. I feel Robbed..totally and viciously ROBBED. I feel horrible most of the time and am trying to get a business off the ground.
More on my condition later..
I have started doing research on Medical Marijuana and its affects on Fibromyagia and this chronic pain that is associated with this debilitating illness. I think they should call this problem "Life Stealer" cause that is what it actually is. I feel Robbed..totally and viciously ROBBED. I feel horrible most of the time and am trying to get a business off the ground.
More on my condition later..
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